MS Support!?

MS isn’t an easy illness to treat, unlike some people who suffer I don’t fail over (much) and I don’t have any visible signs that I am suffering. It is all for a better way of putting it all in my head. I ended up in such a mess at swimming today it just feels like something is miss firing in my brain and isn’t connecting properly. I end up with the feeling of what the fuck am I doing! I kinda feel that I am in “other world” along side the one that I am in.

I came home from work at lunch time on Wednesday because I was just sat at work more or less staring into space. If I could of guaranteed I could just be left alone all day I’d of stayed, but with the concerns of fellow colleagues whose support I couldn’t live without it wouldn’t of happened.

I was out with my 4 year old daughter when this happened today, so I couldn’t just fall apart on the spot! I had to carry on.

I am in the system and see my neruo about once a year, and I have the MS team, but as I am not in a disabling situation there is nothing they will do about “the head stuff” if they give me steroids there are known long term side effects so they just send me on my merry way.

This is where my GP comes into play, she does the ground work the hospital wont do, She sorts my drugs. When I am having problems and I go and see her she will sign me off work, and I know that makes me sound lazy but sometime I HAVE TO BE SIGNED OFF FOR MY OWN GOOD!

So today I ring up to find out she is leaving cause she has had enough! let that sink in a moment.

I can’t just rock up to any old GP and go hey I have MS and I need XYZ because they can’t just click there fingers because they don’t know me. They don’t know my situation! Where as my GP does and she is leaving because she has had enough!

How have things got this bad!? That we are losing the best in the medical profession! We sit at work worrying about losing the good people. Well we are losing the good people medically and yet there is nothing being done to keep them! Apart from making things worse!

I have tweeted the conservatives as that who is “in” in Erewash but I am not expecting a response!

MS needs support and treatment that doesn’t involve seeing the neuro for or can see but won’t do anything and of cause the hospital’s wont sign you off anymore.

I am failing apart right now and luckily for me it doesn’t happen often but! When I do I need the health service and my GPs support and soon there won’t be anybody who is the slightest bit good at there job and understands! Then what do I do!? Where do I go for support then!?


4 thoughts on “MS Support!?

  1. I hope everything works out for the best for you. More funding needs to go to medical research in general. I have some friends and family members with auto immune disorders. Hopefully, you won’t be in a bind for too long. Good luck.

    Liked by 1 person

  2. Dear Claire,

    Not much I can say other than offer a listening ear, or in this case, eye. Hated to click like but there’s no icon on WP like there is on FB.

    Shalom and hugs,



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